Serving Madison, Southern Wisconsin and the greater multiple myeloma community
"Providing an opportunity for multiple myeloma patients
and their loved ones to
come together to exchange information for mutual support, comfort, and friendship"
Multiple myeloma is the second most common blood cancer, and is considered a cancer of the immune system. It is currently considered incurable but is treatable. Multiple myeloma accounts for less than one percent of all cancers. If you are new to understanding multiple myeloma, it may be helpful for you to start with the links in the left column.
Note that multiple myeloma is very individual, and patients should discuss any changes with their physician. The information provided in this Web site is for educational purposes only.
| Overview |
| History |
| Detecting |
| Stages |
| Testing |
| Treating |
| Funding Treatments |
| Clinical Trials |
| At Home: Things To Do |
| Caregiver |
| Blogs |
| Portable Medical History |
|
Questions, or to receive information Email Jayne at: schwartzdon@sbcglobal.net |
Please join us at one of our regular meetings or join the mailing list
for our free monthly newsletter. Family members and friends are encouraged
to participate as well. You will quickly find out you are not alone. We
will help keep you informed of the latest Multiple Myeloma management information.
Next Meeting · December 17, 2025
Dr Zhubin Gahvari, Hematology/Medical Oncology from the UW Carbone Cancer Center will be our featured speaker for the December 17, 2025 meeting. This meeting is on a Wednesday to accommodate Dr. Zhubin's schedule. He will present at 4:30pm. Mark your calendars for Wednesday and not Tuesday. He will be sharing some results of the ASH conference as well as a Q &A session for us.
See the current newsletter for information about:
- Chemo brain (see attachment to newsletter)
Upcoming Meeting Speakers:
- Shannon Ramirez, BSN, RN, OCN Oncology Clinical Educator J & J Innovative
Medicine will be our featured speaker for the January 20, 2026 meeting.
Topic to be determined later.
- Riley Menagh from Blood Cancer United will be our featured speaker for
the February 17, 2026 meeting. Topic to be determined later.
- Shawna Kuhler, Parm D , DCOP Hematology Clinic Parmacist-Myeloma will
be our featured speaker for the March 17, 2026 meeting. She will present
at 3:30pm and topic to be determined. Time will be available for a Q&A
session also.
Past News and Newsletter Information
Madison Multiple Myeloma Support Group monthly meeting
Please join the meeting from your computer, tablet or smartphone.
Zoom
Our virtual meetings are on the Zoom platform.
Download (free) the Zoom software here (or for various devices here)
Zoom support center for help using Zoom
Madison Myeloma Support Group Zoom Meeting
Meeting times will be in the newsletter as these Zoom invitations will be a reoccurring meeting format.
Click to Join Zoom Meeting
Link for above if needed ( Join Zoom Meeting)
https://myeloma-org.zoom.us/j/81745782301?pwd=L2u5V0zAxLtuhQtKh2WZZaO3lsvs8N.1
Meeting ID: 817 4578 2301
Passcode: 636273--
One tap mobile
+16469313860,,81745782301#,,,,*636273# US
+13017158592,,81745782301#,,,,*636273# US (Washington DC)--
Dial by your location
• +1 646 931 3860 US
• +1 301 715 8592 US (Washington DC)
Join by SIP
• 81745782301@zoomcrc.com
Passcode: 636273
To join a Zoom meeting by SIP, you can manually dial the IP address or
SIP URI from your room system and include the meeting ID and password, or
if using a Zoom Room, you can invite the SIP device from the meeting's participant
list. You can also use the "join.zoom.us" website to enter the
meeting ID and a pairing code from your device to connect.
Join instructions
https://myeloma-org.zoom.us/meetings/81745782301/invitations?signature=5XOddRIV7C18PTiqWciBN1DB7ODfFLsyZukqjdrvT5Y
Meeting Time: Third Tuesday of Each Month
3:30 – 5:30 PM
Location: Online via Zoom
For more information:
Jayne Schwartz schwartzdon@sbcglobal.net
or
608-244-2120
International Myeloma Foundation (IMF)
Leukemia & Lymphoma Society® (LLS)
Multiple Myeloma Research Foundation (MMRF)
Smart Patients
Forum (ask questions of the group)
Sign up for the Multiple Myeloma group
Advocacy
Donate
Trillium Fund (University of Wisconsin)
The Trillium Fund was established by our founding support group members to facilitate Multiple Myeloma research here in Madison at the Wisconsin Institute of Medical Research.
If you or your family wish to donate or send a memorial to this program, checks can be made payable to the “UW Foundation – Trillium Fund” and sent to:
UW Carbone Cancer Center,
University of Wisconsin Foundation,
1848 University Ave,
Madison, WI 53726.
Donations may also be made online at:
www.supportuw.org/give
(Trillium Fund in Multiple Myeloma Research – 112903576).
For any questions, please call Janie Winston, at 608-512-6068 or her email: Janie.Winston@supportuw.org
or curecancer@supportuw.org .
Black Swan Research Initiative
Donate
Leukemia & Lymphoma Society
Donate