Serving Madison, Southern Wisconsin and the greater multiple myeloma community
"Providing an opportunity for multiple myeloma patients
and their loved ones to
come together to exchange information for mutual support, comfort, and friendship"
Multiple myeloma is the second most common blood cancer, and is considered a cancer of the immune system. It is currently considered incurable but is treatable. Multiple myeloma accounts for less than one percent of all cancers. If you are new to understanding multiple myeloma, it may be helpful for you to start with the links in the left column.
Note that multiple myeloma is very individual, and patients should discuss any changes with their physician. The information provided in this Web site is for educational purposes only.
|At Home: Things To Do|
|Portable Medical History|
or to receive information
Email Jayne at:
Please join us at one of our regular meetings or join the mailing list for our free monthly newsletter. Family members and friends are encouraged to participate as well. You will quickly find out you are not alone. We will help keep you informed of the latest Multiple Myeloma management information.
Our meeting for November 21, 2023 will be from 3:30pm to 5:30pm.
Our November meeting will be a group share meeting. There are no scheduled speakers.See the current newsletter for information about:
- Have you heard about the Spoon Theory by Christine Miserandino?
- Discussion about the Shingrix vaccines
- Why is Dexamethasone Used In Myeloma?
Current newsletter (PDF)
Upcoming Meeting Speakers:
- Tom Vodicka will be our featured speaker for the December 19, 2023
meeting. Tom recently spoke at the HealthTree coaches meeting that our
group member, David attended. Tom's topic of “Life and Wills”
is a subject that veers off of our usual Myeloma learnings. It promises
to be an interesting presentation. We will still have time for some group
sharing. Mark your calendar now not to miss this meeting.
- Todd Foster, Product Development Director from HeathTree will be our
featured speaker for the January 16, 2024 meeting. He will present information
about the Cure Hub.
- Shannon Blake and Christina Nielsen from the Leukemia, Lymphoma Society
(LLS) will be our featured speakers for the February 20, 2024 meeting.
Christina's topics will be LLS patient and community support materials,
educational programs and financial resources. Shannon's topics will include
LLS research initiatives and the top funded priorities.
- One of the MMRF nurse navigators will present at the March 2024 meeting.
More info to follow.
- Working on getting Dr Aric Hall, UW Carbone Cancer Center for the April
16, 2024 meeting.
- Working on getting Dr Zhubin Gahvari, UW Carbone Cancer Center for the May 21, 2024 meeting. Hoping to get his presentation on Relapsed Myeloma that he shared with us at the recent Multiple Myeloma Research and Patient Care event. The Trillium Research update held October 30th
Upcoming Teleconferences or Webinars
Next Virtual Meeting
Madison Multiple Myeloma Support Group monthly meeting
Please join the meeting from your computer, tablet or smartphone.
Our virtual meetings are on the Zoom platform.
Zoom support center for help using Zoom
Madison Myeloma Support Group Zoom Meeting
Meeting times will be in the newsletter as these Zoom invitations will be a reoccurring meeting format.
IMF SG Meeting Room 3 is inviting you to a scheduled Zoom meeting.
Topic: Madison, WI SG 3rd Tue Monthly
Time: This is a recurring meeting Meet anytime
Click to Join Zoom Meeting
Link for above if needed (https://myeloma-org.zoom.us/j/84457667535?pwd=V0lJTDNQU2FOZ1hMUkFaRmJBc0Qzdz09)
Meeting ID: 844 5766 7535
One tap mobile
+13017158592,,84457667535#,,,,*678275# US (Washington DC)
+13126266799,,84457667535#,,,,*678275# US (Chicago)
Find your local number: https://myeloma-org.zoom.us/u/kyMbCRs05
Multiple Myeloma or Cancer News
A Pretty Flower Toxic to Multiple Myeloma (Fumaria Officinalis also known as ‘earth smoke’)
News... (including information from previous newsletters)
Success and Celebrations
None currently listed
None currently listed
Meeting Time: Third Tuesday of Each Month
3:30 – 5:30 PM
Location: Online via Zoom
For more information:
Jayne Schwartz firstname.lastname@example.org
Forum (ask questions of the group)
Sign up for the Multiple Myeloma group
The Trillium Fund was established by our founding support group members to facilitate Multiple Myeloma research here in Madison at the Wisconsin Institute of Medical Research.
If you or your family wish to donate or send a memorial to this program, checks can be made payable to the “UW Foundation – Trillium Fund” and sent to:
UW Carbone Cancer Center,
University of Wisconsin Foundation,
1848 University Ave,
Madison, WI 53726.
Donations may also be made online at:
(Trillium Fund in Multiple Myeloma Research – 112903576).
For any questions, please call Janie Winston, at 608-512-6068 or her email: Janie.Winston@supportuw.org
or email@example.com .
Leukemia & Lymphoma Society