Multiple Myeloma Caregiver
Caring for someone with multiple myeloma.
Most people have a comfort zone that is their daily routine. The step out of it from time-to-time to go on a new vacation, go to a new restaurant, and so on. Getting a disease like multiple myeloma or any other trauma is equivalent to getting dragged out of the comfort zone. It is hard for the patient and hard for the caregiver and family members. There is a longing for "the way things used to be", but it is a "new normal". It is difficult for others to understand what the patient is going through, and some of the treatments, such as dexamethasone, may make the patient appear crabby or upset with others, when it is the medication causing the anxiety. Clear communication is important.
Multiple
Myeloma: A Guide for Caregivers, Great tips from Everyday Health for multiple
myeloma caregivers
Multiple
Myeloma Symposium: A Caregiver's Perspective | Dana-Farber Cancer Institute
(12:27 minutes)
Cancer Survival Toolbox: Multiple Myeloma - Information for Caregivers (5:13 minutes)
MMRF Revolution Patients & Caregivers, from the Multiple Myeloma Research Foundation - MMRF (2:39 minutes)
Chemo Brain - Is It Real?: What Myeloma Patients and Caregivers Need to Know (1 hour 05:17 minutes)
Blogs
Caring For Someone With Multiple Myeloma – Part 1: Introduction To Being A Caregiver (from the Myeloma Beacon Forums)
Caring For Someone With Multiple Myeloma – Part 2: Practical Caregiving
Caring For Someone With Multiple Myeloma – Part 3: The Toll Of Caregiving
Living with Multiple Myeloma, Caregivers
Robin's Myeloma Caregiver Journal
10 Steps to Avoid Caregiver Burnout in 2011 (from Robin's Myeloma Caregiver Journal)
Multiple Myeloma Caregivers (https://www.facebook.com/MultipleMyelomaCaregivers/?fref=ts)
Multiple Myeloma Support Group (non-profit, a closed group you may join) (https://www.facebook.com/groups/108654495840465/)