Multiple Myeloma Caregiver

Caring for someone with multiple myeloma.

Most people have a comfort zone that is their daily routine. The step out of it from time-to-time to go on a new vacation, go to a new restaurant, and so on. Getting a disease like multiple myeloma or any other trauma is equivalent to getting dragged out of the comfort zone. It is hard for the patient and hard for the caregiver and family members. There is a longing for "the way things used to be", but it is a "new normal". It is difficult for others to understand what the patient is going through, and some of the treatments, such as dexamethasone, may make the patient appear crabby or upset with others, when it is the medication causing the anxiety. Clear communication is important.

Multiple Myeloma: A Guide for Caregivers, Great tips from Everyday Health for multiple myeloma caregivers

VideoMultiple Myeloma Symposium: A Caregiver's Perspective | Dana-Farber Cancer Institute (12:27 minutes)

Cancer Survival Toolbox: Multiple Myeloma - Information for Caregivers (5:13 minutes)

MMRF Revolution Patients & Caregivers, from the Multiple Myeloma Research Foundation - MMRF (2:39 minutes)

Chemo Brain - Is It Real?: What Myeloma Patients and Caregivers Need to Know (1 hour 05:17 minutes)

Caregiving 101


Caring For Someone With Multiple Myeloma – Part 1: Introduction To Being A Caregiver (from the Myeloma Beacon Forums)

Caring For Someone With Multiple Myeloma – Part 2: Practical Caregiving

Caring For Someone With Multiple Myeloma – Part 3: The Toll Of Caregiving

Living with Multiple Myeloma, Caregivers

Robin's Myeloma Caregiver Journal

10 Steps to Avoid Caregiver Burnout in 2011 (from Robin's Myeloma Caregiver Journal)

My Multiple Myeloma


Multiple Myeloma Caregivers (

Multiple Myeloma Support Group (non-profit, a closed group you may join) (