Serving Madison, Southern Wisconsin and the greater multiple myeloma community

"Providing an opportunity for multiple myeloma patients and their loved ones to
come together to exchange information for mutual support, comfort, and friendship"

Multiple myeloma is the second most common blood cancer, and is considered a cancer of the immune system. It is currently considered incurable but is treatable. Multiple myeloma accounts for less than one percent of all cancers. If you are new to understanding multiple myeloma, it may be helpful for you to start with the links in the left column.

Note that multiple myeloma is very individual, and patients should discuss any changes with their physician. The information provided in this Web site is for educational purposes only.

Overview
History
Detecting
Stages
Testing
Treating
Funding Treatments
Clinical Trials
At Home: Things To Do
Caregiver
Blogs
Portable Medical History
Questions,
or to receive information
Email Jayne at:
schwartzdon@sbcglobal.net
 Future Meetings

Please join us at one of our regular meetings or join the mailing list for our free monthly newsletter. Family members and friends are encouraged to participate as well. You will quickly find out you are not alone. We will help keep you informed of the latest Multiple Myeloma management information.

Next Meeting

We will try to get Dr. Aric Hall on our schedule for the May meeting.

See below for May 9 Webinar and the May 16th Webcast. Dr. Callander will speak at 10 AM CDT.

Current newsletter, (PDF)

From the current newsletter:

Upcoming Meeting Speakers…

August meeting: Working on getting a speaker from SHIP (State Health Insurance and Assistance Program)

September meeting: Kelly Sidorowicz, IMF Regional Director Support Groups will be our featured speaker

October meeting: Dr Natalie Callander, UW Carbone Cancer Center will join us

When we need it the most, a group member comes through with words of wisdom.
“No Winter lasts forever; no Spring skips its turn.”
As quoted by Hal Borland.

Make sure you are taking care of yourself. Give yourself permission to be somewhat spoiled!

International Myeloma Foundation Announces FDA Approval of Sarclisa (isatuximab-irfc) (see Newsletter)

Horizon study results - Melfluten for Refractory Myeloma Treatment
(see Newsletter)

Multiple Myeloma or Cancer News

News... (including information from previous newsletters)

Upcoming conferences and teleconferences are listed below

Upcoming Teleconferences or Webinars 

IMF Patient & Family Webinar

This two-hour webinar features a panel discussion about the latest treatments for and management of myeloma led by IMF Chairman Dr. Brian G.M. Durie.

Saturday, May 9, 2020, 120 Minutes

1PM Pacific
2PM Mountain
3PM Central
4PM Eastern

Register for the Webinar.

Myeloma Crowd Round Table Webcast on Saturday, May 16

COVID-19 Updates, Sessions for Newly Diagnosed and Experienced Patients, Q&A with Myeloma Experts, and HealthTree COVID Study Update.

Session One: 10 am-12:30 pm Central Time
COVID-19 and Newly Diagnosed Myeloma

Session Two: 12:30 pm-2:15 Central Time
COVID-19 and Relapsed/Refractory Myeloma, Amyloidosis

Register for the Webcast

Success and Celebrations

None currently listed

Conferences

None currently listed



 

  Meeting Time and Location

  Meeting Time: Third Tuesday of Each Month
  3:30 – 5:30 PM
  Location:
  UW West Clinic
  451 Junction Road
  Madison, WI

  Map and Driving Directions

  Conference room 1287
  Program: In general, speakers every second
  month, group discussion alternate months

  For more information:
  Jayne Schwartz schwartzdon@sbcglobal.net
  or
  608-244-2120

  Madison, Wisconsin Support Information

  Past Newsletters

  Gilda's Club of Madison

  Contact Us or Provide Suggestions

  Wisconsin Support Information

  Wisconsin Multiple Myeloma Groups

  National and International Organizations

  International Myeloma Foundation (IMF)

  Leukemia & Lymphoma Society® (LLS)

  Multiple Myeloma Research Foundation (MMRF)

  Advocacy

  IMF Advocacy Updates

  Donate

  Trillium Fund (University of Wisconsin)

The Trillium Fund was established by our founding support group members to facilitate Multiple Myeloma research here in Madison at the Wisconsin Institute of Medical Research. If you or your family wish to donate or send a memorial to this program, checks can be made payable to the “UW Foundation – Trillium Fund” and sent to:

UW Carbone Cancer Center,
University of Wisconsin Foundation,
1848 University Ave, Madison, WI 53726

Donations may also be made online at:
www.supportuw.org/give
(Trillium Fund in Multiple Myeloma Research – 112903576).

For any questions, please call (608) 264-5437 or email curecancer@supportuw.org

  Black Swan Research Initiative
  Donate

  Leukemia & Lymphoma Society
  Donate