Serving Madison, Southern Wisconsin and the greater multiple myeloma community
"Providing an opportunity for multiple myeloma patients
and their loved ones to
come together to exchange information for mutual support, comfort, and friendship"
Multiple myeloma is the second most common blood cancer, and is considered a cancer of the immune system. It is currently considered incurable but is treatable. Multiple myeloma accounts for less than one percent of all cancers. If you are new to understanding multiple myeloma, it may be helpful for you to start with the links in the left column.
Note that multiple myeloma is very individual, and patients should discuss any changes with their physician. The information provided in this Web site is for educational purposes only.
|At Home: Things To Do|
|Portable Medical History|
or to receive information
Email Jayne at:
Please join us at one of our regular meetings or join the mailing list for our free monthly newsletter. Family members and friends are encouraged to participate as well. You will quickly find out you are not alone. We will help keep you informed of the latest Multiple Myeloma management information.
The next meeting will be on Tuesday July 17, 2018
3:30 PM – 5:30 PM
Current newsletter, (PDF format)
Golf Benefit for Multiple Myeloma Research
The 2018 Golf Benefit for Multiple Myeloma Research will be held on:
Monday, August 13th, 2018 - noon start
Cost: $250 per player/$1000 per foursome at Blackhawk Country Club
Includes: 18 holes of scramble format golf, carts, lunch, dinner, prizes, and more!
Ben Marcus & Katie Dowling-Marcus invite you to participate in the 2nd Annual On Course for a Cure supporting UW Carbone's Trillium Fund for Multiple Myeloma Research
Success and Celebrations
Ben and Katie Marcus hosted a golf benefit for the Trillium Fund for multiple myeloma research. The event was called On Course For a Cure and it raised $74,000. Details and photos.
Matt Howard took first place in the Driftless 50K Trail Race.
Bashir Nasserjah participated in "The Ride", benefiting The UW Carbone Cancer Center.
Multiple Myeloma or Cancer News
News... (Upcoming teleconferences are listed below)
Winter 2016/2017 Edition of Myeloma Today: ASH Highlights and More
UW Health surgeon, Dr. Ben Marcus will be participating in “Moving Mountains for Multiple Myeloma” to raise money and awareness
“Immune System, Unleashed by Cancer Therapies Can Attack Organs” by Matt Richtel
Multiple myeloma and the chemical Permethrin (see news)
The BOSTON Trial Now Enrolling Patients with Relapsed or Refractory Multiple Myeloma
From the February 2018 Newsletter:
CancerCare has received 1.1 million in funds to provide financial assistance to those folks coping with a cancer diagnosis. See their website for more information about qualifying for these funds. The money goes fast so don't delay.
From the June 2018 Newsletter
Managing Peripheral Neuropathy (PDF)
A guide for people with myeloma
Upcoming Teleconferences or Webinars
Meeting Time: Third Tuesday of Each Month
3:30 – 5:30 PM
UW West Clinic
451 Junction Road
Conference room 1287
Program: Speakers Every Second Month,
Group Discussion Alternate Months
For more information:
Jayne Schwartz firstname.lastname@example.org
Advocacy Update, March, 2018
- The Coaliton to Improve Access to Cancer Care
- Myeloma Action Month - Tennessee proclaims March 2018 as Myeloma Action Month
- Bill Introduced to Improve Medicare Cancer Care Coordination
- Right to Try Legislation Update
IMF Advocacy Team Relaunches Coalition
On Tuesday, March 6, 2018, the Patients Equal Access Coalition (PEAC), which is run by the IMF advocacy department, held an event in Washington, D.C. to relaunch the coalition as the Coalition to Improve Access to Cancer Care (CIACC). The relaunch effort will enhance our ability to pass legislation that would prevent insurance companies from applying different co-pays to oral cancer medicine than they do to chemotherapy or other injected treatments through H.R. 1409, the Cancer Drug Parity Act of 2017. The CIACC launched with a new name, logo and website as well as a major awareness campaign on Capitol Hill held on March 7th. Learn more about legislation, relaunch, and the Hill day. -From Mary