Serving Madison, Southern Wisconsin and the greater multiple myeloma community
"Providing an opportunity for multiple myeloma patients
and their loved ones to
come together to exchange information for mutual support, comfort, and friendship"
Multiple myeloma is the second most common blood cancer, and is considered a cancer of the immune system. It is currently considered incurable but is treatable. Multiple myeloma accounts for less than one percent of all cancers. If you are new to understanding multiple myeloma, it may be helpful for you to start with the links in the left column.
Note that multiple myeloma is very individual, and patients should discuss any changes with their physician. The information provided in this Web site is for educational purposes only.
| Overview |
| History |
| Detecting |
| Stages |
| Testing |
| Treating |
| Funding Treatments |
| Clinical Trials |
| At Home: Things To Do |
| Caregiver |
| Blogs |
| Portable Medical History |
|
Questions, or to receive information Email Jayne at: schwartzdon@sbcglobal.net |
Please join us at one of our regular meetings or join the mailing list for our free monthly newsletter. Family members and friends are encouraged to participate as well. You will quickly find out you are not alone. We will help keep you informed of the latest Multiple Myeloma management information.
Next Meeting
The October meeting is online! (see below for details)
Current newsletter, (PDF)
Dr Natalie Callander, UW Carbone Cancer Center will join us at our November meeting. This will be a virtual presentation.
October virtual meeting
Madison Multiple Myeloma Support Group meeting
Tue, Oct 20, 2020 3:30 PM - 4:30 PM (CDT)
Please join my meeting from your computer, tablet or smartphone.
https://global.gotomeeting.com/join/721685429
You can also dial in using your phone.
United States (Toll Free): 1 877 309 2073
United States: +1 (646) 749-3129
Access Code: 721-685-429
New to GoToMeeting? Get the app now and be ready when your first meeting
starts: https://global.gotomeeting.com/install/721685429
New to GoToMeeting?
Get the app now and be ready when your first meeting starts:
https://global.gotomeeting.com/install/124189365
GoToMeeting Tips and Tricks (PDF)
GoToMeeting Notes:
The invitation will allow you to join the meeting from your computer, tablet or smartphone. It is important to not to telephone in if you have already clicked on the link to sign in on your computer, tablet or smartphone. The two audios will compete with each other causing a continuous loop for sound. It resembles screeching like you dialed a Fax phone number instead of the right one. An awful noise! If your desktop computer does not have the audio activated, you will have to telephone in.
If you don't have a webcam on your computer, you probably don't have a mic either and should telephone in. You will not be able to see me leading this meeting as my desktop computer does not have a webcam. As a telephone caller, I will be a black box- no picture.
No computer, no problem. Use toll free 1-877-309-2073 when dialing in. There are limitations to the number of participants when you use the toll free number given in the invitation.
It is very important that we use conversational courtesies. Let's make sure that we don't talk over other people's conversations. It is going to be hard but I know we can do it. If this does not go well, I will try to mute the mics of one of your multiple sound choices. If I cannot get sound clarity, I will need to drop the meeting and try again later.
Dr. Natalie Callander, UW Carbone Cancer Center will be the speaker at the November meeting. During Dr Callander's presentation, all of us will be muted as she presents. If you click on “Hide Everyone”, your screen will become larger and the presentation will be in full screen. There will be time for questions allowed later.
Multiple Myeloma or Cancer News
News... (including information from previous newsletters)
Upcoming conferences and teleconferences are listed below
Upcoming Teleconferences or Webinars
None currently listed
Success and Celebrations
None currently listed
Conferences
Also, save the date for 2021. Hopefully meeting in person next year on Saturday, August 21, 2021.
Meeting Time: Third Tuesday of Each Month
3:30 – 5:30 PM
Location:
UW West Clinic
451 Junction Road
Madison, WI
Conference room 1287
Program: In general, speakers every second
month, group discussion alternate months
For more information:
Jayne Schwartz schwartzdon@sbcglobal.net
or
608-244-2120
International Myeloma Foundation (IMF)
Advocacy
Donate
Trillium Fund (University of Wisconsin)
The Trillium Fund was established by our founding support group members to facilitate Multiple Myeloma research here in Madison at the Wisconsin Institute of Medical Research. If you or your family wish to donate or send a memorial to this program, checks can be made payable to the “UW Foundation – Trillium Fund” and sent to:
UW Carbone Cancer Center,
University of Wisconsin Foundation,
1848 University Ave, Madison, WI 53726
Donations may also be made online at:
www.supportuw.org/give
(Trillium Fund in Multiple Myeloma Research – 112903576).
For any questions, please call (608) 264-5437 or email curecancer@supportuw.org
Black Swan Research Initiative
Donate
Leukemia & Lymphoma Society
Donate