Please join us at one of our regular meetings or join the mailing list for our free monthly newsletter. Family members and friends are encouraged to participate as well. You will quickly find out you are not alone. We will help keep you informed of the latest Multiple Myeloma management information.

Next Meeting

The next meeting will be on Tuesday August 20, 2019
3:30 PM – 5:30 PM

Kelley Sidorowicz, IMF Support Group Regional Director will be our featured speaker at the August meeting. She will join us at 3:30pm and will have a Q & A time available.

Kelley Sidorowicz joined the IMF’s Support Group team in 2019 after previously being part of the Advocacy team since 2016, working on federal and state policy issues as well as helping the IMF to grow our grassroots network. Previously, she worked in the health and wellness community as a
certified health and wellness educator, personal trainer, and yoga instructor. Kelley holds a Bachelor of Science degree in Exercise Physiology from Frostburg State University. She resides in Southern Maryland.

Current newsletter, (PDF format)

Upcoming Meeting Speakers…

• Our Myeloma Support Group will be recognizing a milestone 20 years in September. No speaker is planned. Leaving the time open for us to celebrate!
  
• Dr Natalie Callander will likely join us for the October meeting.
  
• Dr Shannon O'Mahar will be our featured speaker for the December meeting. She will likely be presenting 2019 ASH conference highlights.

New Fact Sheet Available from LLS

This new fact sheet provides information for patients and their families about minimal residual disease (MRD), which refers to the small number of cancer cells that remain in the body after treatment.

Click here to download the PDF or order a free copy.

From the LLS Patient Education Team

Conferences

3rd Annual Myeloma Patient and Caregiver Symposium in Pewaukee,
WI Saturday, September 28th, 2019. Click here to see the flyer for details

Multiple Myeloma or Cancer News

News... (Upcoming teleconferences are listed below)

Wisconsin State Journal Friday, August 9, 2019 - Medicare to Cover Gene Therapy. See more in News

Brand new booklet from the IMF Educational Series.... Understanding Peripheral Neuropathy in Myeloma. This can be viewed online and is very well written. Very comprehensive and will expand what you may already know about this subject. Bet you didn't know about “Pickle Juice”? See page
13.

Our group member, Bashir Nasserjah will be doing “The Ride”, Sunday, September 22, 2019 Madison, WI. To support him and all the riders, go to www.theridewi.org. This ride fundraiser will support the cancer research at the UW-Madison.

ChemioCare Developing New Lenalidomide Skin Patch

Attached to the January email: Time to talk about Multiple Myeloma

Please see the December, 2018 newsletter for news about approval of a new drug therapy (EPd) for treatment of relapsed or refractory myeloma in patients who have received at least two prior therapies

MMRF introduces MyDRUG (Myeloma – Developing Regimens Using Genomics) clinical trial. (More in the December, 2018 newsletter)

Upcoming Teleconferences or Webinars 

None currently listed

Success and Celebrations

Matt Howard took first place in the Driftless 50K Trail Race.

Bashir Nasserjah participated in "The Ride", benefiting The UW Carbone Cancer Center.