Serving Madison, Southern Wisconsin and the greater multiple myeloma community
"Providing an opportunity for multiple myeloma patients
and their loved ones to
come together to exchange information for mutual support, comfort, and friendship"
Multiple myeloma is the second most common blood cancer, and is considered a cancer of the immune system. It is currently considered incurable but is treatable. Multiple myeloma accounts for less than one percent of all cancers. If you are new to understanding multiple myeloma, it may be helpful for you to start with the links in the left column.
Note that multiple myeloma is very individual, and patients should discuss any changes with their physician. The information provided in this Web site is for educational purposes only.
| Overview |
| History |
| Detecting |
| Stages |
| Testing |
| Treating |
| Funding Treatments |
| Clinical Trials |
| At Home: Things To Do |
| Caregiver |
| Blogs |
| Portable Medical History |
|
Questions, or to receive information Email Jayne at: schwartzdon@sbcglobal.net |
March is Myeloma Awareness Month
Please join us at one of our regular meetings or join the mailing list for our free monthly newsletter. Family members and friends are encouraged to participate as well. You will quickly find out you are not alone. We will help keep you informed of the latest Multiple Myeloma management information.
Next Meeting
The March Support Group meeting is cancelled.
We will try to get Dr. Aric Hall on our schedule for the May meeting.
Current newsletter, (PDF)
From the current newsletter:
Coronavirus and Myeloma Patient Safety - Information from Dr. Durie, IMF.
Upcoming Meeting Speakers…
August meeting: Working on getting a speaker from SHIP (State Health Insurance and Assistance Program)
September meeting: Kelly Sidorowicz, IMF Regional Director Support Groups will be our featured speaker
October meeting: Dr Natalie Callander, UW Carbone Cancer Center will join us
The PROMISE Study
The PROMISE Study is a collaborative research project screening individuals at higher risk for multiple myeloma.
The PROMISE Study Brochure (PDF)
New Fact Sheet Available from LLS
This new fact sheet provides information for patients and their families about minimal residual disease (MRD), which refers to the small number of cancer cells that remain in the body after treatment.
Click here to download the PDF or order a free copy.
From the LLS Patient Education Team
Multiple Myeloma or Cancer News
News... (including information from previous newsletters)
Upcoming conferences and teleconferences are listed below
Conferences
None currently listed
Upcoming Teleconferences or Webinars
None currently listed
Success and Celebrations
None currently listed
Meeting Time: Third Tuesday of Each Month
3:30 – 5:30 PM
Location:
UW West Clinic
451 Junction Road
Madison, WI
Conference room 1287
Program: In general, speakers every second
month, group discussion alternate months
For more information:
Jayne Schwartz schwartzdon@sbcglobal.net
or
608-244-2120
International Myeloma Foundation (IMF)
Advocacy
Donate
Trillium Fund (University of Wisconsin)
The Trillium Fund was established by our founding support group members to facilitate Multiple Myeloma research here in Madison at the Wisconsin Institute of Medical Research. If you or your family wish to donate or send a memorial to this program, checks can be made payable to the “UW Foundation – Trillium Fund” and sent to:
UW Carbone Cancer Center,
University of Wisconsin Foundation,
1848 University Ave, Madison, WI 53726
Donations may also be made online at:
www.supportuw.org/give
(Trillium Fund in Multiple Myeloma Research – 112903576).
For any questions, please call (608) 264-5437 or email curecancer@supportuw.org
Black Swan Research Initiative
Donate
Leukemia & Lymphoma Society
Donate