Serving Madison, Southern Wisconsin and the greater multiple myeloma community
"Providing an opportunity for multiple myeloma patients
and their loved ones to
come together to exchange information for mutual support, comfort, and friendship"
Multiple myeloma is the second most common blood cancer, and is considered a cancer of the immune system. It is currently considered incurable but is treatable. Multiple myeloma accounts for less than one percent of all cancers. If you are new to understanding multiple myeloma, it may be helpful for you to start with the links in the left column.
Note that multiple myeloma is very individual, and patients should discuss any changes with their physician. The information provided in this Web site is for educational purposes only.
| Overview |
| History |
| Detecting |
| Stages |
| Testing |
| Treating |
| Funding Treatments |
| Clinical Trials |
| At Home: Things To Do |
| Caregiver |
| Blogs |
| Portable Medical History |
|
Questions, or to receive information Email Jayne at: schwartzdon@sbcglobal.net |
Please join us at one of our regular meetings or join the mailing list for our free monthly newsletter. Family members and friends are encouraged to participate as well. You will quickly find out you are not alone. We will help keep you informed of the latest Multiple Myeloma management information.
Next Meeting
Tuesday, June 15, 2021 3:30 PM - 4:30 PM (CDT)
Upcoming Meetings
- July: Michelle Lakner, Nurse Practitioner for the UW Carbone Cancer
will be out featured speaker at July's meeting. More information to follow.
Jayne will be collecting questions ahead of this meeting. Those
questions will become the starting point of her Q & A .
See the current newsletter for information about:
- House of Representatives Holds Drug Pricing Hearings
- IMF website, they have recently updated their “Myeloma Terms and
Definitions” guide. - Send questions for Michelle Lakner, Nurse Practitioner for the UW Carbone Cancer for the July meeting.
Current newsletter, (PDF)
Upcoming Teleconferences or Webinars
Upcoming Myeloma Crowd Community Events Click here to view all upcoming events:
- Why Do I Need a Multiple Myeloma Specialist?
- Smart Snacking- How to Choose a Satisfying Snack
- Finding Support Through a Myeloma Coach
- ASCO/EHA Meeting Review: Register Now for the Myeloma Crowd Round Table Interactive Webcast on June 26
- The COVID-19 SCT: A Patient and Caregiver's Perspective
- Clinical Trials for High Risk Smoldering Myeloma Patients
- Discovering if You're High Risk at Diagnosis
June Virtual Meeting
Madison Multiple Myeloma Support Group monthly meeting
Please join my meeting from your computer, tablet or smartphone.
Zoom
Our virtual meetings will now be on the Zoom platform.
Download (free) the Zoom software here (or for various devices here)
Zoom support center for help using Zoom
Madison Myeloma Support Group Zoom Meeting
Meeting times will be in the newsletter as these Zoom invitations will be a reoccurring meeting format.
IMF SG Meeting Room 3 is inviting you to a scheduled Zoom meeting.
Topic: Madison, WI SG 3rd Tue Monthly
Time: This is a recurring meeting Meet anytime
Click to Join Zoom Meeting
Link for above if needed (https://myeloma-org.zoom.us/j/84457667535?pwd=V0lJTDNQU2FOZ1hMUkFaRmJBc0Qzdz09)
Meeting ID: 844 5766 7535
Passcode: 678275
One tap mobile
+13017158592,,84457667535#,,,,*678275# US (Washington DC)
+13126266799,,84457667535#,,,,*678275# US (Chicago)
Find your local number: https://myeloma-org.zoom.us/u/kyMbCRs05
Multiple Myeloma or Cancer News
Statins Reduce Mortality in Multiple Myeloma Patients
A Pretty Flower Toxic to Multiple Myeloma (Fumaria Officinalis also known as ‘earth smoke’)
News... (including information from previous newsletters)
Upcoming conferences and teleconferences are listed below
Success and Celebrations
None currently listed
Conferences
The annual Multiple Myeloma Patient and Caregiver Symposium
Save the date for 2021. Hopefully meeting in person next year on Saturday, August 21, 2021.
Meeting Time: Third Tuesday of Each Month
3:30 – 5:30 PM
Location:
UW West Clinic
451 Junction Road
Madison, WI
Conference room 1287
Program: In general, speakers every second
month, group discussion alternate months
For more information:
Jayne Schwartz schwartzdon@sbcglobal.net
or
608-244-2120
International Myeloma Foundation (IMF)
Advocacy
Donate
Trillium Fund (University of Wisconsin)
The Trillium Fund was established by our founding support group members to facilitate Multiple Myeloma research here in Madison at the Wisconsin Institute of Medical Research. If you or your family wish to donate or send a memorial to this program, checks can be made payable to the “UW Foundation – Trillium Fund” and sent to:
UW Carbone Cancer Center,
University of Wisconsin Foundation,
1848 University Ave, Madison, WI 53726
Donations may also be made online at:
www.supportuw.org/give
(Trillium Fund in Multiple Myeloma Research – 112903576).
For any questions, please call (608) 264-5437 or email curecancer@supportuw.org
Black Swan Research Initiative
Donate
Leukemia & Lymphoma Society
Donate