Serving Madison, Southern Wisconsin and the greater multiple myeloma community
"Providing an opportunity for multiple myeloma patients
and their loved ones to
come together to exchange information for mutual support, comfort, and friendship"
Multiple myeloma is the second most common blood cancer, and is considered a cancer of the immune system. It is currently considered incurable but is treatable. Multiple myeloma accounts for less than one percent of all cancers. If you are new to understanding multiple myeloma, it may be helpful for you to start with the links in the left column.
Note that multiple myeloma is very individual, and patients should discuss any changes with their physician. The information provided in this Web site is for educational purposes only.
|At Home: Things To Do|
|Portable Medical History|
or to receive information
Email Jayne at:
Please join us at one of our regular meetings or join the mailing list for our free monthly newsletter. Family members and friends are encouraged to participate as well. You will quickly find out you are not alone. We will help keep you informed of the latest Multiple Myeloma management information.
The July meeting has been cancelled
Current newsletter, (PDF)
Dr Natalie Callander, UW Carbone Cancer Center will join us at our October meeting. This will likely be a virtual presentation.
The annual Multiple Myeloma Patient and Caregiver Symposium that has previously been held in in Pewaukee, WI will be a virtual event this year. It is scheduled for September 19th . More details to follow from our contact, Maria Voermans, Froedert Hospitals and Clinics.
Early Data for Teclistamab Shows Deep Responses
Janssen Pharmaceuticals has reported preliminary results from the first-in-human phase I dose escalation study of teclistamab for patients with relapsed or refractory multiple myeloma. Teclistamab is an investigational bispecific antibody targeting both B-cell maturation antigen and CD3 receptors on T-cells. The treatment achieved a 67% overall response rate among 12 patients who received the highest dosage, with 3 of the patients achieving a complete response. The full results of the clinical trial will be reported at the ASCO20 Virtual Scientific Program. (More in the newsletter).
In Person Meetings
The status of our in-person support group meeting is still undetermined.
I have reached out to other support groups that meet at UW facilities to
see if they have any information about when and how our meetings might resume.
What will they look like moving forward? Will there be limited numbers of
people to attend meetings? Will there be requirements like hand sanitizers, masks, etc.? Will there be a reduction of meeting time? I will keep you updated as I learn more. There is the possibility of a virtual meeting but I don't know that this is what we all need right now.
Upcoming Meeting Speakers (all on hold for now)…
Working on getting a speaker from SHIP (State Health Insurance and Assistance Program)
Kelly Sidorowicz, IMF Regional Director Support Groups
Dr. Natalie Callander, UW Carbone Cancer Center
Multiple Myeloma or Cancer News
News... (including information from previous newsletters)
Upcoming conferences and teleconferences are listed below
Upcoming Teleconferences or Webinars
None currently listed
Success and Celebrations
None currently listed
None currently listed
Meeting Time: Third Tuesday of Each Month
3:30 – 5:30 PM
UW West Clinic
451 Junction Road
Conference room 1287
Program: In general, speakers every second
month, group discussion alternate months
For more information:
Jayne Schwartz firstname.lastname@example.org
The Trillium Fund was established by our founding support group members to facilitate Multiple Myeloma research here in Madison at the Wisconsin Institute of Medical Research. If you or your family wish to donate or send a memorial to this program, checks can be made payable to the “UW Foundation – Trillium Fund” and sent to:
UW Carbone Cancer Center,
University of Wisconsin Foundation,
1848 University Ave, Madison, WI 53726
Donations may also be made online at:
(Trillium Fund in Multiple Myeloma Research – 112903576).
For any questions, please call (608) 264-5437 or email email@example.com
Leukemia & Lymphoma Society