Serving Madison, Southern Wisconsin and the greater multiple myeloma community

"Providing an opportunity for multiple myeloma patients and their loved ones to
come together to exchange information for mutual support, comfort, and friendship"

Multiple myeloma is the second most common blood cancer, and is considered a cancer of the immune system. It is currently considered incurable but is treatable. Multiple myeloma accounts for less than one percent of all cancers. If you are new to understanding multiple myeloma, it may be helpful for you to start with the links in the left column.

Note that multiple myeloma is very individual, and patients should discuss any changes with their physician. The information provided in this Web site is for educational purposes only.

Funding Treatments
Clinical Trials
At Home: Things To Do
Portable Medical History
or to receive information
Email Jayne at:
 Future Meetings

Please join us at one of our regular meetings or join the mailing list for our free monthly newsletter. Family members and friends are encouraged to participate as well. You will quickly find out you are not alone. We will help keep you informed of the latest Multiple Myeloma management information.

Next Meeting

The July meeting has been cancelled

Current newsletter, (PDF)

Dr Natalie Callander, UW Carbone Cancer Center will join us at our October meeting. This will likely be a virtual presentation.

The annual Multiple Myeloma Patient and Caregiver Symposium that has previously been held in in Pewaukee, WI will be a virtual event this year. It is scheduled for September 19th . More details to follow from our contact, Maria Voermans, Froedert Hospitals and Clinics.

Early Data for Teclistamab Shows Deep Responses in Myeloma

Janssen Pharmaceuticals has reported preliminary results from the first-in-human phase I dose escalation study of teclistamab for patients with relapsed or refractory multiple myeloma. Teclistamab is an investigational bispecific antibody targeting both B-cell maturation antigen and CD3 receptors on T-cells. The treatment achieved a 67% overall response rate among 12 patients who received the highest dosage, with 3 of the patients achieving a complete response. The full results of the clinical trial will be reported at the ASCO20 Virtual Scientific Program. (More in the newsletter).

In Person Meetings

The status of our in-person support group meeting is still undetermined. I have reached out to other support groups that meet at UW facilities to see if they have any information about when and how our meetings might resume. What will they look like moving forward? Will there be limited numbers of
people to attend meetings? Will there be requirements like hand sanitizers, masks, etc.? Will there be a reduction of meeting time? I will keep you updated as I learn more. There is the possibility of a virtual meeting but I don't know that this is what we all need right now.

Upcoming Meeting Speakers (all on hold for now)…

Working on getting a speaker from SHIP (State Health Insurance and Assistance Program)

Kelly Sidorowicz, IMF Regional Director Support Groups

Dr. Natalie Callander, UW Carbone Cancer Center

Multiple Myeloma or Cancer News

News... (including information from previous newsletters)

Upcoming conferences and teleconferences are listed below

Upcoming Teleconferences or Webinars 

None currently listed

Success and Celebrations

None currently listed


None currently listed


  Meeting Time and Location

  Meeting Time: Third Tuesday of Each Month
  3:30 – 5:30 PM
  UW West Clinic
  451 Junction Road
  Madison, WI

  Map and Driving Directions

  Conference room 1287
  Program: In general, speakers every second
  month, group discussion alternate months

  For more information:
  Jayne Schwartz

  Madison, Wisconsin Support Information

  Past Newsletters

  Gilda's Club of Madison

  Contact Us or Provide Suggestions

  Wisconsin Support Information

  Wisconsin Multiple Myeloma Groups

  National and International Organizations

  International Myeloma Foundation (IMF)

  Leukemia & Lymphoma Society® (LLS)

  Multiple Myeloma Research Foundation (MMRF)


  IMF Advocacy Updates


  Trillium Fund (University of Wisconsin)

The Trillium Fund was established by our founding support group members to facilitate Multiple Myeloma research here in Madison at the Wisconsin Institute of Medical Research. If you or your family wish to donate or send a memorial to this program, checks can be made payable to the “UW Foundation – Trillium Fund” and sent to:

UW Carbone Cancer Center,
University of Wisconsin Foundation,
1848 University Ave, Madison, WI 53726

Donations may also be made online at:
(Trillium Fund in Multiple Myeloma Research – 112903576).

For any questions, please call (608) 264-5437 or email

  Black Swan Research Initiative

  Leukemia & Lymphoma Society