Serving Madison, Southern Wisconsin and the greater multiple myeloma community

"Providing an opportunity for multiple myeloma patients and their loved ones to
come together to exchange information for mutual support, comfort, and friendship"

Multiple myeloma is the second most common blood cancer, and is considered a cancer of the immune system. It is currently considered incurable but is treatable. Multiple myeloma accounts for less than one percent of all cancers. If you are new to understanding multiple myeloma, it may be helpful for you to start with the links in the left column.

Note that multiple myeloma is very individual, and patients should discuss any changes with their physician. The information provided in this Web site is for educational purposes only.

Overview
History
Detecting
Stages
Testing
Treating
Funding Treatments
Clinical Trials
At Home: Things To Do
Caregiver
Blogs
Portable Medical History
Questions,
or to receive information
Email Jayne at:
schwartzdon@sbcglobal.net
 Future Meetings

Please join us at one of our regular meetings or join the mailing list for our free monthly newsletter. Family members and friends are encouraged to participate as well. You will quickly find out you are not alone. We will help keep you informed of the latest Multiple Myeloma management information.

Next Meeting

The next meeting will be on Tuesday December 18, 2018
3:30 PM – 5:30 PM

The meeting speaker is Carly Borchert, Clinical Nurse Consultant-Milwaukee District, Celegene Corporation. Carly will present “The Myeloma Central Tour” and speak briefly about the Myeloma Crowd. Don't miss this special meeting.

Current newsletter, (PDF format)

Conferences

None currently listed

Upcoming Teleconferences or Webinars 

The IMF will present highlights from the 60th ASH Annual Meeting & Exposition held in San Diego, California Dec 1-4, 2018

Save the Date: January 10th , 2019 Best of ASH 2018: What patients and Caregivers Need to Know. More information to follow.

Success and Celebrations

Matt Howard took first place in the Driftless 50K Trail Race.

Bashir Nasserjah participated in "The Ride", benefiting The UW Carbone Cancer Center.

Multiple Myeloma or Cancer News

News... (Upcoming teleconferences are listed below)

Please see the current newsletter (December, 2018) for news about approval of a new drug therapy (EPd) for treatment of relapsed or refractory myeloma in patients who have received at least two prior therapies

MMRF introduces MyDRUG (Myeloma – Developing Regimens Using Genomics) clinical trial. (More in the December, 2018 newsletter)

Older...

“On Course for A Cure 2018”, the 2nd annual golf outing was held on August 13, 2018. The event was a huge success. During the dinner presentations, the Mt Everest climb was not shown. Time did not permit. Our Dr Ben participated in this climb to raise funds for the MMRF.

However, the 13-minute video can be viewed on Facebook. Here is the link to the video if anyone would like to see it: The cinematography is quite stunning and the stories are inspiring.

Here is an excerpt of the IMF letter in response to the Department of Health and Human Services Blue Print to Lower Drug Prices and Reduce Out-OF-Pocket Costs -July 2018. This is a subject that we should all be very concerned about. (PDF)

Joe Ripp Music CD Fundraiser

Dr. Callander Award

Winter 2016/2017 Edition of Myeloma Today: ASH Highlights and More

Immune System, Unleashed by Cancer Therapies Can Attack Organs” by Matt Richtel

Multiple myeloma and the chemical Permethrin (see news)

The BOSTON Trial Now Enrolling Patients with Relapsed or Refractory Multiple Myeloma

From the February 2018 Newsletter:

CancerCare has received 1.1 million in funds to provide financial assistance to those folks coping with a cancer diagnosis. See their website for more information about qualifying for these funds. The money goes fast so don't delay.

From the June 2018 Newsletter

Managing Peripheral Neuropathy (PDF)
A guide for people with myeloma


 

  Meeting Time and Location

  Meeting Time: Third Tuesday of Each Month
  3:30 – 5:30 PM
  Location:
  UW West Clinic
  451 Junction Road
  Madison, WI

  Map and Driving Directions

  Conference room 1287
  Program: Speakers Every Second Month,
  Group Discussion Alternate Months

  For more information:
  Jayne Schwartz schwartzdon@sbcglobal.net
  or
  608-244-2120

  Madison, Wisconsin Support Information

  Past Newsletters

  Gilda's Club of Madison

  Contact Us or Provide Suggestions

  Wisconsin Support Information

  Wisconsin Multiple Myeloma Groups

  National and International Organizations

  International Myeloma Foundation (IMF)

  Leukemia & Lymphoma Society® (LLS)

  Multiple Myeloma Research Foundation (MMRF)

  Advocacy

  IMF Advocacy Updates

Advocacy Update, March, 2018

  • The Coaliton to Improve Access to Cancer Care
  • Myeloma Action Month - Tennessee proclaims March 2018 as Myeloma Action Month
  • Bill Introduced to Improve Medicare Cancer Care Coordination
  • Right to Try Legislation Update

IMF Advocacy Team Relaunches Coalition

On Tuesday, March 6, 2018, the Patients Equal Access Coalition (PEAC), which is run by the IMF advocacy department, held an event in Washington, D.C. to relaunch the coalition as the Coalition to Improve Access to Cancer Care (CIACC).

The relaunch effort will enhance our ability to pass legislation that would prevent insurance companies from applying different co-pays to oral cancer medicine than they do to chemotherapy or other injected treatments through H.R. 1409, the Cancer Drug Parity Act of 2017.

The CIACC launched with a new name, logo and website as well as a major awareness campaign on Capitol Hill held on March 7th. Learn more about legislation, relaunch, and the Hill day. -From Mary

  Donate

  Trillium Fund (University of Wisconsin)

  Black Swan Research Initiative
  Donate

  Leukemia & Lymphoma Society
  Donate