Serving Madison, Southern Wisconsin and the greater multiple myeloma community
"Providing an opportunity for multiple myeloma patients
and their loved ones to
come together to exchange information for mutual support, comfort, and friendship"
Multiple myeloma is the second most common blood cancer, and is considered a cancer of the immune system. It is currently considered incurable but is treatable. Multiple myeloma accounts for less than one percent of all cancers. If you are new to understanding multiple myeloma, it may be helpful for you to start with the links in the left column.
Note that multiple myeloma is very individual, and patients should discuss any changes with their physician. The information provided in this Web site is for educational purposes only.
|At Home: Things To Do
|Portable Medical History
or to receive information
Email Jayne at:
Please join us at one of our regular meetings or join the mailing list for our free monthly newsletter. Family members and friends are encouraged to participate as well. You will quickly find out you are not alone. We will help keep you informed of the latest Multiple Myeloma management information.
Our meeting for February 20, 2024 will be from 3:30pm to 5:30pm.
Shannon Blake and Christina Nielsen from the Leukemia, Lymphoma Society (LLS) will be our featured speakers for the February 20, 2024 meeting. Christina's topics will be LLS patient and community support materials, educational programs and financial resources. Shannon's topics will include LLS research initiatives and the top funded priorities.
Our featured speakers will start presenting at 4:00 pm
See the current newsletter for information about:
- At the August 2023 meeting, we talked about a gap in patient care that
we identified as needing a solution but we did not quite know how to move
forward with this issue. I offered to write to the Carbone Cancer Center
Patient Relations department to share our concerns and offer suggestions.
Our intention is not to criticize or complain about current treatment.
- Our group member, David Barton is a HealthTree Foundation coach. He
is amazing and always available to help answers questions. He sent this
link for folks that want to know more about Navigators.
This link does a nice job of describing the benefits of Nurse Navigators for Multiple Myeloma Patients.
Especially toward end of article. The added cost can lead to payback (eg. if some of the 30% of patients who don’t take their oral meds start taking them).
Current newsletter (PDF)
Upcoming Meeting Speakers:
- One of the MMRF nurse navigators will present at the March 2024 meeting.
More information to follow.
- Working on getting Dr Aric Hall, UW Carbone Cancer Center for the April
16, 2024 meeting.
- Working on getting Dr Zhubin Gahvari, UW Carbone Cancer Center for the May 21, 2024 meeting. Hoping to get his presentation on Relapsed Myeloma that he shared with us at the recent Multiple Myeloma Research and Patient Care event. The Trillium Research update held October 30th.
Upcoming Teleconferences or Webinars
Madison Multiple Myeloma Support Group monthly meeting
Please join the meeting from your computer, tablet or smartphone.
Our virtual meetings are on the Zoom platform.
Zoom support center for help using Zoom
Madison Myeloma Support Group Zoom Meeting
Meeting times will be in the newsletter as these Zoom invitations will be a reoccurring meeting format.
IMF SG Meeting Room 3 is inviting you to a scheduled Zoom meeting.
Topic: Madison, WI SG 3rd Tue Monthly
Time: This is a recurring meeting Meet anytime
Click to Join Zoom Meeting
Link for above if needed (https://myeloma-org.zoom.us/j/84457667535?pwd=V0lJTDNQU2FOZ1hMUkFaRmJBc0Qzdz09)
Meeting ID: 844 5766 7535
One tap mobile
+13017158592,,84457667535#,,,,*678275# US (Washington DC)
+13126266799,,84457667535#,,,,*678275# US (Chicago)
Find your local number: https://myeloma-org.zoom.us/u/kyMbCRs05
Meeting Time: Third Tuesday of Each Month
3:30 – 5:30 PM
Location: Online via Zoom
For more information:
Jayne Schwartz firstname.lastname@example.org
Forum (ask questions of the group)
Sign up for the Multiple Myeloma group
The Trillium Fund was established by our founding support group members to facilitate Multiple Myeloma research here in Madison at the Wisconsin Institute of Medical Research.
If you or your family wish to donate or send a memorial to this program, checks can be made payable to the “UW Foundation – Trillium Fund” and sent to:
UW Carbone Cancer Center,
University of Wisconsin Foundation,
1848 University Ave,
Madison, WI 53726.
Donations may also be made online at:
(Trillium Fund in Multiple Myeloma Research – 112903576).
For any questions, please call Janie Winston, at 608-512-6068 or her email: Janie.Winston@supportuw.org
or email@example.com .
Leukemia & Lymphoma Society