Serving Madison, Southern Wisconsin and the greater multiple myeloma community
"Providing an opportunity for multiple myeloma patients
and their loved ones to
come together to exchange information for mutual support, comfort, and friendship"
Multiple myeloma is the second most common blood cancer, and is considered a cancer of the immune system. It is currently considered incurable but is treatable. Multiple myeloma accounts for less than one percent of all cancers. If you are new to understanding multiple myeloma, it may be helpful for you to start with the links in the left column.
Note that multiple myeloma is very individual, and patients should discuss any changes with their physician. The information provided in this Web site is for educational purposes only.
|At Home: Things To Do|
|Portable Medical History|
or to receive information
Email Jayne at:
Please join us at one of our regular meetings or join the mailing list for our free monthly newsletter. Family members and friends are encouraged to participate as well. You will quickly find out you are not alone. We will help keep you informed of the latest Multiple Myeloma management information.
The next meeting will be on Tuesday February 19, 2019
3:30 PM – 5:30 PM
Dr Sara Christensen Holz, Associate Professor Dept of Orthopedics and Rehabilitation
will be our featured speaker February 2019. She will speak about balance
issues and neuropathy from 3:30 - 4:00.
Current newsletter, (PDF format)
See the current newsletter for:
- Questions about Medicare Part D or Medicare Advantage
- Dane County Wisconsin participants only - YMCA LiveStrong program
- See Jayne's email about Drugs in Current Use for Multiple Myeloma
None currently listed
Upcoming Teleconferences or Webinars
None currently listed
Success and Celebrations
Matt Howard took first place in the Driftless 50K Trail Race.
Bashir Nasserjah participated in "The Ride", benefiting The UW Carbone Cancer Center.
Multiple Myeloma or Cancer News
News... (Upcoming teleconferences are listed below)
Attached to the January email: Time to talk about Multiple Myeloma
Please see the current newsletter (December, 2018) for news about approval of a new drug therapy (EPd) for treatment of relapsed or refractory myeloma in patients who have received at least two prior therapies
MMRF introduces MyDRUG (Myeloma – Developing Regimens Using Genomics) clinical trial. (More in the December, 2018 newsletter)
for A Cure 2018”, the 2nd annual golf outing was held on August 13,
2018. The event was a huge success. During the dinner presentations, the
Mt Everest climb was not shown. Time did not permit. Our Dr Ben participated
in this climb to raise funds for the MMRF.
However, the 13-minute video can be viewed on Facebook. Here is the link to the video if anyone would like to see it: The cinematography is quite stunning and the stories are inspiring.
is an excerpt of the IMF letter in response to the Department of Health
and Human Services Blue Print to Lower Drug Prices and Reduce Out-OF-Pocket
Costs -July 2018. This is a subject that we should all be very concerned
Winter 2016/2017 Edition of Myeloma Today: ASH Highlights and More
“Immune System, Unleashed by Cancer Therapies Can Attack Organs” by Matt Richtel
Multiple myeloma and the chemical Permethrin (see news)
The BOSTON Trial Now Enrolling Patients with Relapsed or Refractory Multiple Myeloma
From the February 2018 Newsletter:
CancerCare has received 1.1 million in funds to provide financial assistance to those folks coping with a cancer diagnosis. See their website for more information about qualifying for these funds. The money goes fast so don't delay.
From the June 2018 Newsletter
Managing Peripheral Neuropathy
A guide for people with myeloma
Meeting Time: Third Tuesday of Each Month
3:30 – 5:30 PM
UW West Clinic
451 Junction Road
Conference room 1287
Program: In general, speakers every second
month, group discussion alternate months
For more information:
Jayne Schwartz email@example.com
Advocacy Update, March, 2018
- The Coaliton to Improve Access to Cancer Care
- Myeloma Action Month - Tennessee proclaims March 2018 as Myeloma Action Month
- Bill Introduced to Improve Medicare Cancer Care Coordination
- Right to Try Legislation Update
IMF Advocacy Team Relaunches Coalition
On Tuesday, March 6, 2018, the Patients Equal Access Coalition (PEAC), which is run by the IMF advocacy department, held an event in Washington, D.C. to relaunch the coalition as the Coalition to Improve Access to Cancer Care (CIACC).
The relaunch effort will enhance our ability to pass legislation that would prevent insurance companies from applying different co-pays to oral cancer medicine than they do to chemotherapy or other injected treatments through H.R. 1409, the Cancer Drug Parity Act of 2017.
The CIACC launched with a new name, logo and website as well as a major awareness campaign on Capitol Hill held on March 7th. Learn more about legislation, relaunch, and the Hill day. -From Mary