Serving Madison, Southern Wisconsin and the greater multiple myeloma community
"Providing an opportunity for multiple myeloma patients
and their loved ones to
come together to exchange information for mutual support, comfort, and friendship"
Multiple myeloma is the second most common blood cancer, and is considered a cancer of the immune system. It is currently considered incurable but is treatable. Multiple myeloma accounts for less than one percent of all cancers. If you are new to understanding multiple myeloma, it may be helpful for you to start with the links in the left column.
Note that multiple myeloma is very individual, and patients should discuss any changes with their physician. The information provided in this Web site is for educational purposes only.
| Overview |
| History |
| Detecting |
| Stages |
| Testing |
| Treating |
| Funding Treatments |
| Clinical Trials |
| At Home: Things To Do |
| Caregiver |
| Blogs |
| Portable Medical History |
|
Questions, or to receive information Email Jayne at: schwartzdon@sbcglobal.net |
Please join us at one of our regular meetings or join the mailing list for our free monthly newsletter. Family members and friends are encouraged to participate as well. You will quickly find out you are not alone. We will help keep you informed of the latest Multiple Myeloma management information.
Next Meeting
We will try to get Dr. Aric Hall on our schedule for the May meeting.
See below for May 9 Webinar and the May 16th Webcast. Dr. Callander will speak at 10 AM CDT.
Current newsletter, (PDF)
From the current newsletter:
Upcoming Meeting Speakers…
August meeting: Working on getting a speaker from SHIP (State Health Insurance and Assistance Program)
September meeting: Kelly Sidorowicz, IMF Regional Director Support Groups will be our featured speaker
October meeting: Dr Natalie Callander, UW Carbone Cancer Center will join us
When we need it the most, a group member comes through with words of wisdom.
“No Winter lasts forever; no Spring skips its
turn.”
As quoted by Hal
Borland.
Make sure you are taking care of yourself. Give yourself permission to be somewhat spoiled!
International Myeloma Foundation Announces FDA Approval of Sarclisa (isatuximab-irfc) (see Newsletter)
Horizon study results - Melfluten for Refractory Myeloma Treatment
(see Newsletter)
Multiple Myeloma or Cancer News
News... (including information from previous newsletters)
Upcoming conferences and teleconferences are listed below
Upcoming Teleconferences or Webinars
IMF Patient & Family Webinar
This two-hour webinar features a panel discussion about the latest treatments for and management of myeloma led by IMF Chairman Dr. Brian G.M. Durie.
Saturday, May 9, 2020, 120 Minutes
1PM Pacific
2PM Mountain
3PM Central
4PM Eastern
Register for the Webinar.
Myeloma Crowd Round Table Webcast on Saturday, May 16
COVID-19 Updates, Sessions for Newly Diagnosed and Experienced Patients, Q&A with Myeloma Experts, and HealthTree COVID Study Update.
Session One: 10 am-12:30 pm Central Time
COVID-19 and Newly Diagnosed Myeloma
- Natalie Callander, MD, University of Wisconsin-Madison
- Luciano Costa, MD, University of Alabama at Birmingham
- Binod Dhakal, MD, Medical College of Wisconsin
Session Two: 12:30 pm-2:15 Central Time
COVID-19 and Relapsed/Refractory Myeloma, Amyloidosis
- Parameswaran Hari, MD, MRCP, Medical College of Wisconsin
- Nina Shah, MD, University of California San Francisco
- Jeffrey Zonder, MD, Karmanos Cancer Institute, Detroit
Register
for the Webcast
Success and Celebrations
None currently listed
Conferences
None currently listed
Meeting Time: Third Tuesday of Each Month
3:30 – 5:30 PM
Location:
UW West Clinic
451 Junction Road
Madison, WI
Conference room 1287
Program: In general, speakers every second
month, group discussion alternate months
For more information:
Jayne Schwartz schwartzdon@sbcglobal.net
or
608-244-2120
International Myeloma Foundation (IMF)
Advocacy
Donate
Trillium Fund (University of Wisconsin)
The Trillium Fund was established by our founding support group members to facilitate Multiple Myeloma research here in Madison at the Wisconsin Institute of Medical Research. If you or your family wish to donate or send a memorial to this program, checks can be made payable to the “UW Foundation – Trillium Fund” and sent to:
UW Carbone Cancer Center,
University of Wisconsin Foundation,
1848 University Ave, Madison, WI 53726
Donations may also be made online at:
www.supportuw.org/give
(Trillium Fund in Multiple Myeloma Research – 112903576).
For any questions, please call (608) 264-5437 or email curecancer@supportuw.org
Black Swan Research Initiative
Donate
Leukemia & Lymphoma Society
Donate