Serving Madison, Southern Wisconsin and the greater multiple myeloma community
"Providing an opportunity for multiple myeloma patients
and their loved ones to
come together to exchange information for mutual support, comfort, and friendship"
Multiple myeloma is the second most common blood cancer, and is considered a cancer of the immune system. It is currently considered incurable but is treatable. Multiple myeloma accounts for less than one percent of all cancers. If you are new to understanding multiple myeloma, it may be helpful for you to start with the links in the left column.
Note that multiple myeloma is very individual, and patients should discuss any changes with their physician. The information provided in this Web site is for educational purposes only.
|At Home: Things To Do|
|Portable Medical History|
or to receive information
Email Jayne at:
Please join us at one of our regular meetings or join the mailing list for our free monthly newsletter. Family members and friends are encouraged to participate as well. You will quickly find out you are not alone. We will help keep you informed of the latest Multiple Myeloma management information.
The September meeting is online! (see below for details)
Current newsletter, (PDF)
Dr Natalie Callander, UW Carbone Cancer Center will join us at our October meeting. This will likely be a virtual presentation.
Here it is! Our 1st virtual meeting
Below is an invitation to join the meeting from your computer, tablet
or smartphone. It is important to not to phone
in if you have already clicked on the link below to sign in on your computer,
tablet or smartphone. The two audios will compete with each other causing
a continuous loop for sound. It
resembles screeching like you dialed a Fax phone number instead of the right one. An awful noise!
If you don't have a webcam on your computer, you probably don't have a mic either and should phone in. You will not be able to see me leading this meeting as my desktop computer does not have a webcam. As a caller, I will be a black box-no picture. Use toll free 1-877-309-2073 when dialing in. No computer, no problem. Just use the toll free number to call in. There are limitations to the number of participants.
It is very important that we use conversational courtesies. Let's make sure that we don't talk over other people's conversations. It is going to be hard but I know we can do it. If this does not go well, I will try to mute the mics of one of your multiple sound choices. If I cannot get sound clarity, I will need to drop the meeting and try again later.
Madison Multiple Myeloma Support Group meeting
Tue, Sep 15, 2020 3:30 PM - 5:00 PM (CDT)
Please join my meeting from your computer, tablet or smartphone.
You can also dial in using your phone.
United States (Toll Free): 1 866 899 4679
United States: +1 (571) 317-3116
Access Code: 124-189-365
New to GoToMeeting?
Get the app now and be ready when your first meeting starts:
See the newsletter for:
Free Virtual Seminars
4th Annual Multiple Myeloma Patient and Caregiver Symposium
Saturday, September 19th 9:00 AM - 2:00 PM central time
Click the link below to register.
Saturday, September 26th 9:00 AM - 11:00 AM central
time - MMRF Experts Session
The Multiple Myeloma Research Foundation is hosting a FREE online event developed to provide multiple myeloma patients and their families/caregivers insights into key clinical advancements and hot
Click the link below to register for this free webinar.
Our group member Paul, passed along these two upcoming LLS blood related
Virtual National Blood Cancer Conferences
MM speaker is Bob Orlowski from MD Anderson -September 12, 2020
MM speaker is from U of Illinois – October 17, 2020
(12:00pm-12:45pm session on Myeloma)
In Person Meetings
The status of our in-person support group meeting is still undetermined.
I have reached out to other support groups that meet at UW facilities to
see if they have any information about when and how our meetings might resume.
What will they look like moving forward? Will there be limited numbers of
people to attend meetings? Will there be requirements like hand sanitizers, masks, etc.? Will there be a reduction of meeting time? I will keep you updated as I learn more. There is the possibility of a virtual meeting but I don't know that this is what we all need right now.
Upcoming Meeting Speakers (all on hold for now)…
Working on getting a speaker from SHIP (State Health Insurance and Assistance Program)
Kelly Sidorowicz, IMF Regional Director Support Groups
Dr. Natalie Callander, UW Carbone Cancer Center
Multiple Myeloma or Cancer News
News... (including information from previous newsletters)
Upcoming conferences and teleconferences are listed below
Upcoming Teleconferences or Webinars
None currently listed
Success and Celebrations
None currently listed
The annual Multiple Myeloma Patient
and Caregiver Symposium - Saturday, September 19th
This year’s MM symposium will be virtual, held on the same date that was originally planned to host the in-person event, Saturday, 9/19. They are still finalizing agenda details. The event will not be quite as long as the in-person would normally be, but will still include providers from various healthcare
institutions like UW-Madison, Froedtert, Medical College of WI, Pro Health, Aurora, etc.
Also, save the date for 2021. Hopefully meeting in person next year on Saturday, August 21, 2021.
Meeting Time: Third Tuesday of Each Month
3:30 – 5:30 PM
UW West Clinic
451 Junction Road
Conference room 1287
Program: In general, speakers every second
month, group discussion alternate months
For more information:
Jayne Schwartz email@example.com
The Trillium Fund was established by our founding support group members to facilitate Multiple Myeloma research here in Madison at the Wisconsin Institute of Medical Research. If you or your family wish to donate or send a memorial to this program, checks can be made payable to the “UW Foundation – Trillium Fund” and sent to:
UW Carbone Cancer Center,
University of Wisconsin Foundation,
1848 University Ave, Madison, WI 53726
Donations may also be made online at:
(Trillium Fund in Multiple Myeloma Research – 112903576).
For any questions, please call (608) 264-5437 or email firstname.lastname@example.org
Leukemia & Lymphoma Society